In the first 5 months of this Rotary year, the club has donated approximately £7,500 to the following charities - National Autistic Society, the Bridge traing and Development in Hanley swan, Acorns Childrens' Hospice, Breast Cancer Care, End Polio Now, Rotary Foundation (Rotary's own charity worldwide), Parkinsons UK, the Welsh Guards Charity, Heartstart Malvern, Cancer Research and WM UK.
WM UK is the UK's only charity focusing on support for patients, carers, doctors and nurses involved in the treatment of Waldenström's Macroglobulinemia (WM).
WMUK is a unique not for profit organisation, also a registered charity, developed jointly to bring WM patients and medical professionals closer together to improve the treatment of WM. It was originally set up to deliver an annual WMUK doctor/ patient forum in London. We have a medical board of leading doctors treating WM in the UK (see below) together with patient representatives. Many of the doctors are involved in updating the treatment guidelines for the disease, undertake research and attend wm confrernces. You can join a dedicated doctor forum which meets regularly in London - just send us a message. We also assist WM research in the UK with modest grants and for travel in the case of young researchers.
Apart from providing a point of contact, WMUK is also involved in patient advocacy at UK and EU level. It works closely with the IWMF, based in Sarasota, Florida and the European WM Network. In common with many other rare diseases, the current economic climate of budget cuts and reconfiguration of the NHS may mean the small numbers of patients, and relatively expensive and specialised treatment that WM patients need, may put advanced treatments under threat.
More recently with support from people like you, and that of other bodies such as the IWMF and Pharma we have launched an ambitious funding package- for the Rory Morrison UK Patient Data Registry, a Biobank at University College Hospital in London (jointly with the IWMF) and sponsorship of a research fellowship investigating IgM production in WM at Leeds Teaching Hospital under Dr Roger Owen. We have just been accepted for the GECIP 100,000 genomes project and now fund the collection of samples for DNA analysis, providing 'spit tubes' to take patient samples for DNA testing.